Sickle cell patients, families and supporters can lobby lawmakers for better healthcare on Jan. 23 at the Georgia Dome.
Sickle Cell Day at the Georgia State Capitol takes place 9 a.m. to 1 p.m.
The Sickle Cell Foundation of Georgia which organizes the day says legislators make decisions about the creation and the accountability of services for people affected by sickle cell disease.
“It is critical that they hear first-hand the voices of those affected by this devastating disease,” the foundation said in a statement. “On Capitol Day, Sickle Cell patients from across Georgia will meet with Legislators under the Gold Dome to advocate for access to better care, Medicaid expansion and pain management.”
The day’s program will include continental breakfast and
lunch at the Capitol.
Sickle cell disease and sickle cell trait are genetic blood disorders that affect nearly all ethnic groups, but disproportionately impact the African American community.
The disease is painful and can be fatal. People who carry sickle cell trait experience few, if any symptoms and may not be aware of, or take necessary precaution to prevent passing along the gene to their children.
The foundation, which offers testing by appointment, encourages everyone of child-bearing age to be tested for sickle cell.
It is asking the sickle cell community to show up, stand up and help Georgia patients and their families living with the effects of Sickle Cell Disease.
A “Preparation Meet Up” for Capitol Day will be held on Jan. 17.
To attend the the Meet Up and Sickle Cell Foundation Capitol Day, register at
404-755-1641 ext. 206.
The Meet Up takes place at 2391 Benjamin E. Mays Drive, S.W.in Atlanta.
The Georgia State Capitol is at 206 West Washington Street in downtown Atlanta. Sickle Cell Foundation Capitol Day takes place in capitol’s South Wing.